The ultimate goal is to prevent further SUDEP deaths.
What is SUDEP?
refers to the sudden death of a person with epilepsy where no cause is found at autopsy. People with epilepsy who have frequent
convulsive seizures appear to be most at risk.
The first step in solving a problem is to acknowledge it exists; the more we know about SUDEP,
the more we can do to prevent it.
“Awareness is the first step in understanding the cause and prevention
of SUDEP. If we can't identify cases we can't learn anything about them. Through advocacy and research we can save
Dr. Elizabeth Donner, Pediatric Neurologist and researcher at Toronto’s
Hospital for Sick Children and Co-founder of SUDEP Aware.